This moment
I wanted to close this blog down with one long overdue post. Jul has recovered from her surgeries and has a full range of motion on her right side. She still gets phantom pains where they removed her breast but if that is all we are left with, we consider ourselves lucky. Jul hasn’t seen any side effects from the Tamoxifen and she will take it for the next five years. All data shows the cancer was removed.
My cancer brought me a great deal of clarity and erased an immense amount of fear. I am comfortable with my inevitable death and feel oddly invincible as a result. This is an amazing place to be. I watched Jul work through this minefield of growth and feel lucky to stand with her on the other side.
Our second dance with cancer made it brutally clear to me that while I was comfortable with my own mortality, I most certainly was not comfortable with Jul’s death. While I found my own death peaceful, the idea that she would leave me here, alone, was terrifying. Working through this fear was a journey that started the day we found out how bad things looked for her. I am confident I have found my soulmate — the brutal reality that I might not live my life with her was earth shattering.
So much of what I have learned over these past three years I see expressed by endless cliches on t-shirts and bumper stickers. But there is a gap between reading these words and understanding them. And then an even bigger gap between understanding them and living them.
The moments I have, the right now, are all mine. My experience, our experiences, gave us anchors to remember this. Radiation tattoos on my chest, surgery scars on our bodies, simple habits like rubbing my thumb against my index and middle finger. Each of these pull me back to now and remind me what is important.
Richard Bach said it best in his book Illusions,
Every person, all the events of your life, are there because you have drawn them there.
What you choose to do with them is up to you.
I am sitting on the couch in our bedroom, looking at the leaves blow in the trees above our house. There are few sounds more peaceful than that of wind gently rustling the leaves. The house is quiet and my puppy is asleep on my chest. Jul and I didn’t choose to live — that was just luck. But given this chance, we both choose life. I choose to feel my puppy’s heartbeat against my chest. I close my eyes and hear Jul’s breathing as she sleeps across the room. I choose to feel the wind roll in through the window and brush across my skin. I choose to be here, right now. I choose to be more alive than I could have ever imaged possible. I choose this moment.
Thank you all for being a part of this journey.

August 31st, 2006 at 1:53 pm
Beautiful words and ideas. May we all learn even just a little bit from your journeys.
I now see how challenging it is for me to simply enjoy the moment and understand what I am missing. But I am working on that a little each day.
This is truly the appropriate timing for the close of this chapter of your life and the start of a new one. Joy.
November 8th, 2006 at 9:34 pm
Thanks for the blog, I learnt a lot from it. I am a BRCA2 with DCIS patient who is also seeing Dr Dirbas. I supposed to have mastectomies asap but my mom is terminal with ovarian cancer. She may only have a month or two to live. I am currently spending a month with her and then go ahead with the surgery.
I am really very happy for you that you can start a new chapter of your life. I am very happy and feel warm as we are being taken care off by the same doctor and same hospital. Best health!
November 11th, 2006 at 12:13 am
Thanks so much for the kind words Elvina.
I’m so sorry to hear about your diagnosis and your Mom’s condition. Just one of those situations would be hard to handle. I can’t imagine how hard it is to deal with both at once. I’m really glad you are seeing Dr. Dirbas. While not always the easiest doctor to relate to on a personal level, both my wife and I believe he is, without question, one of the best surgeons out there. I have no doubt this will be something you will beat. Stay strong and hang in there.
I’m glad the blog could help. Please let me or Jul know if there is anything we can do. We would be happy to help in any way possible. We will be thinking of you and your mother during these difficult months.
Hope, strength, love,
sj
June 29th, 2007 at 3:38 pm
I found your blog very helpful. I had a mastectomy done by Dr. Dirbas on February 14, 2007.
I had some similar experiences and had to come north to Seattle, so originally was scheduled to see Dr. Carlson, but saw Dr. Gralow at the Seattle Cancer Care Alliance. I am headed back to Stanford and will see Dr. Carlson and Dr. Dirbas for follow up in July.
I have tested positive on the genotype tests, but only in the 19% ile, so that is not the worse case scenario. I was given Femara instead of tamoxifen and no chemo.
Thanks again for your blog. It has been helpful.
Earlene
I hope that things are going well for you both.
August 17th, 2007 at 11:27 am
Hi Earlene,
We are so glad the site could be helpful. I’m glad to hear you are doing well — I hope your follow-up went well in July. Jul and I are still testing clear and very optimistic about the future.